Mind The Gap ​

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A video project created and compiled by Iris Lorena that aims to highlight the significant gaps between symptom onset and diagnosis. A collaboration with the non-profit organisation Project Sleep for World Narcolepsy Day 2023.

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Check it out here!

Social Health Awards 2023 Nominee​

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A video project created and compiled by Iris Lorena, asking children what they think narcolepsy is. A collaboration with the non-profit organisation Project Sleep for World Narcolepsy Day 2022.

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Check it out here!

Narcolepsy and Kids Video​

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A video project created and compiled by Iris Lorena, asking children what they think narcolepsy is. A collaboration with the non-profit organisation Project Sleep for World Narcolepsy Day 2022.

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Check it out here!

Narcolepsy Around the World Panel​

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Featuring an international panel of people living with narcolepsy to explore global perspectives on awareness, advocacy, and support. 

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Check it out here!

Sleep In 2022 - Sleeping Under The Stars: Camping and Traveling with Sleep Disorders

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Hosted by board member, Emma Cooksey (@sleepapneastories), with many special guests, Michelle (@olivebug__), Stacy (@cpapbabes), Hugh (@narcoleptic.adventurer), Kristen (@meandmycpap), Iris (@lifeinflashesblogger), and Ashley (@the_traveling_narcoleptic).

From mountain climbing with narcolepsy to camping with sleep apnea, the guests shared their stories of traveling and camping with sleep disorders.  

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Check it out here!

When I Grow Up - A World Narcolepsy Day Video

A World Narcolepsy Day Committee video sharing stories about people living with narcolepsy and their career experiences.

Participants:

@glenn2145
@leah_boyle
@kaylamdouglas
@sandramatiasmua
@narcolepsia.es
@project_sleep
@lyssapetey
@irislorenapg

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Check it out here!

WakeUp Narcolepsy's - World Narcolepsy Day Panel Discussion 2022

 A panel with leading experts and advocates from across the globe (five continents) to raise awareness, reduce stigma, and advance the conversation on the importance of social support!⁠

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Check it out here!

World Narcolepsy Day 2021

I celebrated my 2nd year on the World Narcolepsy Day Committee with a bang! 

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It was such an amazing year and working with Project Sleep is always such an amazing and inspiring experience!

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Check it out here!

Living with Narcolepsy During a Pandemic: A Virtual Discussion

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Avadel hosted a virtual panel moderated by Dr. Asim Roy, medical director at the Ohio Sleep Medicine Institute, me and a fellow advocate, Kara,  shared our experiences living with narcolepsy. We shared our journey to diagnosis, how our symptoms of cataplexy and excessive daytime sleepiness affect our lives, and how we navigated living with narcolepsy during the COVID-19 pandemic. 

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Check out the complete interview here!

National Poetry Month 2021

Project Sleep took the initiative to create a series that highlight poets and poetry from the community throughout the month of April and I was lucky enough to be invited to write a poem for this occasion!

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Read the complete poem here!

Project Sleep's Rising Voices of Narcolepsy

Iris Vasconcelos is an advocate for invisible illnesses, freelance writer, and blogger from Portugal. She was diagnosed with narcolepsy at 28 years old after experiencing symptoms for 13 years. As a speaker with Project Sleep’s Rising Voices of Narcolepsy Program, she is telling her story with the hope of empowering others to do the same.

Watch it here!

Narcolepsy, Nap Ninjas and why it remains one of the most mysterious of all sleep disorders.

Interview with Tom "The Sleep Guy" in the "Sleep Dose": A podcast that explores many sleep disorders and the importance of sleep.

In this episode, I share stories related to my symptoms and overcoming the challenges of living with narcolepsy. 

Listen here!

 

Ep060: Invisible Disability: How to Live With Narcolepsy with Iris Lorena

Interview with Dr. Yishan Xu on the "Deep Into Sleep" Podcast about living with narcolepsy,

Listen here!

I feel privileged and unbelievably thankful to share with you all that I was invited to join the World Narcolepsy Committee (2020).

Amazing experience!
 

 

World Narcolepsy Day 2020 will take place on Sept. 22, 2020. This day is dedicated to raising awareness of narcolepsy on a global scale.

Established by 24 patient advocacy organizations across 6 continents in 2019, World Narcolepsy Day unites the international narcolepsy community to inspire action, increase public knowledge, and elevate the voices of the 3 million people living with narcolepsy worldwide.

Get involved and use the hashtag #WorldNarcolepsyDay.

I'm so pleased to announce that I have been invited to participate in this year's Rising Voices of Narcolepsy Writing Program! 

A program that serves the dual purposes, through speaking and writing, of fostering a new generation of narcolepsy patient-advocates spreading awareness while also empowering participants. 
 
If you would like to know more about the Program please find more in information either in my Blog post "Whispers of Life" or by visiting Project Sleep's page here.